My phone number has changed!  If you need or want to get in contact with me please e-mail me at and if needed I will give you my new phone number!

                                             Shelly
 

Hi, Welcome to MOARK IC!

Interstitial Cystitis (IC) is a chronic inflammatory bladder condition that can cause a range of symptoms from mild tenderness and urgency, or low back pain, to severe, agonizing pain and burning. The symptoms can differ greatly between patients and even the same person daily. Many conditions often accompany IC, making treatment difficult and very individual.

Treatment is frustrating not only to the patient but also to the healthcare professionals treating IC patients. Our goal is to help you, with your physician, find the coping tools that work for you!  We also are here to reassure you that your not alone and maybe even help you meet some IC friends near home too!

It is our dream at MOARK IC to be a great resource for patients and medical professionals here at home in Missouri and Arkansas, (and the KC area too), that goes well beyond the internet into the daily lives of people here! If you are a patient please stop by and let us know your here.  If you are a healthcare provider, or have a great healthcare provider that treats IC patients, please let us know, so we can include them in our medical resource guide!  Our heart is to be here to help you, together we can make a difference in our region!

You can also join us on facebook at:

 http://www.facebook.com/n/?group.php&gid=231007650524&mid=c05391G3d88c5b5Ga816e5G6

Let us know how we can help you!

Shelly Matthewson
MoArkIC.com Director
 

Shop Vitapal and save big on your supplements and help MOARK IC

help others too:

New Research Study being started at WU in St. Louis.  Details and contact information below, if your interested in participating! 

This is a 12 month study. After the first visit (Screening/Baseline visit), participants will be asked to come back to the clinical center twice during the next 12 months, as well as complete a brief biweekly (every other week) and bimonthly (every other month) computer questionnaires at home in between clinic visits. In addition to the clinic visits and online assessments, during the next 12 months participants will be asked to collect a maximum of 4 home urine samples to aid in our study of how symptoms change over time. Participants will also be given the option to enroll in additional network research studies that will provide new and important information for the main study.

More details about the study are also available on the MAPP study website (http://www.mappnetwork.org/).

 We have begun recruiting so please feel free to pass this information on to your support group members. Please have them call me at 314-454-7325 and I can answer any questions about the study and see if they are eligible to participate.

 We are also recruiting chronic prostatitis patients.

Rebecca Bristol

Research Patient Coordinator

Washington University School of Medicine

Dept. of Surgery-Urologic Surgery, Box 8242

Phone: (314) 454-7325

Fax: (314) 362-8240